around the world


Soft Bones
The US Hypophosphatasia Foundation and Soft Bones Canada provide both information and a community to educate, empower, and connect patients, families, and caregivers living with HPP.


Hypophosphatasie Europe
Written in French. Offers information about HPP, including patient stories, patient rights, and research in Europe.

Rare disease and HPP advocacy


 
www.rarediseaseday.org
February 28 is Rare Disease Day, an annual event to raise awareness with the public and decision makers about rare diseases and their impact on patients’ lives.