Webinars

Informative hypophosphatasia talks, case studies, and survey data

Is HPP in Your Practice? Diagnosing Hypophosphatasia

A lecture presented by Dr. Jill Simmons and Dr. Katherine Madson and hosted by Dr. Camille Bedrosian of Alexion Pharmaceuticals

Understanding the Multisystemic Effects of Hypophosphatasia (HPP)

A case study approach

Videos

Learn about hypophosphatasia mechanism of disease, critical care points, and diagnostics

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Patient Testimonials

Patient and family experiences with hypophosphatasia

"The biggest struggle for me is the energy and keeping my pain at a place where I can still function."

"I first learned of hypophosphatasia when Abigail was diagnosed at 7 months old."

"I was born with it, struggled a lot through birth and my teen years."

"He gave me a blood test, and sure enough, my alkaline phosphatase was very low."

"We kept telling them . . . it’s not a nutrition issue, it’s something else."

"She looks like everything’s fine, when underneath there’s so many issues…"

Brittan and her mother share Brittan’s lifelong struggles with hypophosphatasia.
Dawn discusses the importance of getting the right diagnosis.
Julie discusses the challenges of growing up with hypophosphatasia.
Sueann talks about what it was like to get diagnosed with hypophosphatasia and her concerns about how it might affect her children.
The Browns recall their difficulties finding the right diagnosis and treatment advice for their child with hypophosphatasia.
Aubrey’s mother, Amy, talks about raising and caring for a child with hypophosphatasia.

Downloads

In-depth papers and print resources on diagnoses, critical care points, lessons learned, and analysis of hypophosphatasia

The role of dentists in identifying hypophosphatasia (Alexion Pharmaceuticals 2015)

Download the Comprehensive Clinical Assessment Tool

Hypophosphatasia websites

You're not alone in helping patients with hypophosphatasia. Explore further resources from other professionals and organizations treating hypophosphatasia.

Hypophosphatasie Deutschland e.V.

Hypophosphatasie Europe

Soft rel="noopener noreferrer" Bones: the US Hypophosphatasia Foundation

MAGIC Foundation

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Tools to help you identify, understand, and treat hypophosphatasia (HPP)