For Valuable Updates and Resources

Tools to help you identify, understand, and treat hypophosphatasia (HPP)


Informative hypophosphatasia talks, case studies, and survey data

A lecture presented by Dr. Jill Simmons and Dr. Katherine Madson and hosted by Dr. Camille Bedrosian of Alexion Pharmaceuticals


Learn about hypophosphatasia mechanism of disease, critical care points, and diagnostics




Patient Testimonials

Patient and family experiences with hypophosphatasia

"The biggest struggle for me is the energy and keeping my pain at a place where I can still function."

"I first learned of hypophosphatasia when Abigail was diagnosed at 7 months old."


"I was born with it, struggled a lot through birth and my teen years."


"He gave me a blood test, and sure enough, my alkaline phosphatase was very low."


"We kept telling them . . . it’s not a nutrition issue, it’s something else."


"She looks like everything’s fine, when underneath there’s so many issues…"



In-depth papers and print resources on diagnoses, critical care points, lessons learned, and analysis of hypophosphatasia


Hypophosphatasia websites

You're not alone in helping patients with hypophosphatasia. Explore further resources from other professionals and organizations treating hypophosphatasia.


Hypophosphatasie Deutschland e.V.

Hypophosphatasie Europe

Soft rel="noopener noreferrer" Bones: the US Hypophosphatasia Foundation

MAGIC Foundation


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