Soft Bones

The US Hypophosphatasia Foundation and Soft Bones Canada provide both information and a community to educate, empower, and connect patients, families, and caregivers living with HPP.

Hypophosphatasie Deutschland

Written in German. Helps patients, families, and caregivers living with HPP better understand the illness.

Hypophosphatasie Europe

Written in French. Offers information about HPP, including patient stories, patient rights, and research in Europe.

 

www.rarediseaseday.org

February 28 is Rare Disease Day, an annual event to raise awareness with the public and decision makers about rare diseases and their impact on patients’ lives.