Hypophosphatasia (HPP) at Any Age
HPP can look different from
childhood to adulthood
childhood to adulthood
HPP can affect people at any point in life
Everyone’s journey to discovering HPP is different. Many symptoms of HPP may look different between children and adults, but some are common in any age group.
Understanding what to look for and how to describe symptoms may help support earlier recognition. Consider using the guide below to help organize your symptoms and thoughts before your next appointment.
Understanding what to look for and how to describe symptoms may help support earlier recognition. Consider using the guide below to help organize your symptoms and thoughts before your next appointment.
Could it be HPP? Brochure
Use this guide to reflect more deeply on symptoms and prepare for your next doctor visit.
How Amy and Suzanne found answers
Hear how Amy and Suzanne tracked their symptoms and moved closer to an HPP diagnosis.
You are your child’s advocate, their number one cheerleader. So, if you feel something is wrong, trust your gut instinct.- Elizabeth, mother to Josiah, Living With HPP
HPP can affect all ages
HPP in Adults (18+)
Common symptoms
Some common symptoms of HPP may include:
- Softening bones
- Muscle weakness
- Brain fog
- Joint pain
- Kidney problems
- Poor teeth and gums
- Frequent fatigue or lack of energy
Impact
HPP may show up as difficulty with everyday
activities, such as:
activities, such as:
- Commuting to and from work
- Climbing up or down the stairs
- Exercising or playing sports
- Keeping up with children
- Completing errands and chores
- Standing for longer periods of time
As I got older, we could see more things happening with more people in our family. For us it was just tough, because we couldn’t put it together.- Amy, Living With HPP
Getting a diagnosis as early as possible is important at any age
HPP can get worse over time, which is why seeking answers about unexplained symptoms can be important.
If you or a loved one experiences difficulties with everyday activities and you suspect HPP, talk to your doctor.
Ask about testing for low ALP to determine if it’s HPP.
Keep looking for answers. The sooner HPP is recognized, the sooner you can get the care you need.
If you or a loved one experiences difficulties with everyday activities and you suspect HPP, talk to your doctor.
Ask about testing for low ALP to determine if it’s HPP.
Keep looking for answers. The sooner HPP is recognized, the sooner you can get the care you need.
Learn why HPP is often mistaken for other conditions and what doctors look for during diagnosis.
Discover helpful tools, downloadable resources, advocacy groups, and other ways to stay informed and supported.
Stay connected with updates and information about HPP, no matter where you or your loved one is on the journey.
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