Hypophosphatasia (HPP) Impacts Life
HPP symptoms can shape
everyday experiences
everyday experiences
How HPP can affect daily life
For people living with HPP, doing common activities and everyday tasks—such as running, walking, and activities of daily living like using the stairs, carrying groceries, or caring for yourself or your children—can be difficult.
HPP can affect your quality of life, even if you don’t have broken bones or fractures. HPP may also affect your work, relationships, or everyday activities.
Managing the symptoms of HPP and navigating their impact each day can take an emotional toll. Recognizing these challenges is an important step toward finding understanding and support.
HPP can affect your quality of life, even if you don’t have broken bones or fractures. HPP may also affect your work, relationships, or everyday activities.
Managing the symptoms of HPP and navigating their impact each day can take an emotional toll. Recognizing these challenges is an important step toward finding understanding and support.
Once I was diagnosed with HPP, the puzzle pieces started to fall into place, my muscles are weaker and my joints hurt.- Carol, Living With HPP
One of my earliest symptoms of HPP was problems with my teeth, which affected my speech. I couldn’t say ‘r’s’ or ‘s’s’. I had sisters named Suzy or Terry, so that was fun.- Amy, Living With HPP
Trying to cook when you only have one arm because the other is in a cast makes things very difficult...- Brian, Living With HPP
While HPP can affect daily life in many ways, understanding what’s behind these symptoms can be an important step toward finding answers.
Use this guide to learn more about HPP and feel more informed at your doctor visits.
Understanding HPP Brochure
Find helpful information about HPP, including the role of ALP, common symptoms, and available resources.
Hear real-life stories from people living with HPP
Changing the Family Story
Find out how twin sisters, Amy and Suzanne, searched for and received their HPP diagnosis.
Explore more stories from people living with HPP
You don’t have to deal with HPP alone
Connecting with the HPP community, patient advocacy groups, and trusted resources can help support learning,
preparation, and connection. Peer Connects offers one way to connect with others who understand the HPP experience.
Some other options available to you are:
Some other options available to you are:
- Educational tools
- Community and peer support
- Independent advocacy organizations
I want them to know there are other people out there and they can have a full, great life. They don’t have to stay in bubble wrap.- Brian, Living With HPP
Learn how HPP symptoms may begin in childhood or adulthood and change over time.
Join an event to learn about HPP and connect with the community.
Stay connected with updates and information about HPP, no matter where you or your loved one is on the journey.
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