Hypophosphatasia (HPP) Support
You are not alone—HPP resources are available
You can start checking your HPP symptoms
Here's a quick, interactive way to reflect on symptoms and support conversations with a doctor.
It’s very important to push for answers when your child has HPP because you need to know the best ways to support your child.- Elizabeth, mother to Josiah, Living With HPP
Download or request resources to learn more about HPP
Could it be HPP? Brochure
Use this guide to reflect more deeply on symptoms and prepare for your next doctor visit.
Understanding HPP Brochure
Explore helpful information about HPP, including the role of alkaline phosphatase (ALP), symptoms, and support resources.
Talking About HPP Brochure
A simple guide with tools to help people with HPP and caregivers explain the condition and handle everyday situations.
Family Tree Brochure
Learn how HPP can affect a family tree, and share this resource with family members who want to learn more.
Programs designed to support you along the way
OneSource™
OneSource is a complimentary, personalized patient support program offered by Alexion. OneSource is made up of dedicated Case Managers with expertise in HPP, including information on a possible treatment option and health insurance, who are ready to help.
Peer Connects
Speak with an HPP STAR through a phone-based program to hear their story and get answers to your HPP questions.
HPP STAR Ambassador Program
This program encourages those impacted by HPP to share their story to educate, inspire, and support others in the HPP community.
Advocacy organizations that stand with you
Soft Bones
Soft Bones, Inc., The US Hypophosphatasia Foundation provides information and a community to educate, empower, and connect people, families, and caregivers living with HPP.
The Avalon Foundation
The Avalon Foundation provides emotional and mental support to pediatric patients diagnosed with HPP and undergoing enzyme replacement therapy treatment.
Global Genes
Global Genes builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease.
The National Organization for Rare Disorders (NORD)
The NORD provides education, advocacy, research, and patient services for people with rare diseases and other organizations that serve them.
The groups listed above are independent, nonprofit patient service organizations. Their listing on this website does not imply endorsement of any product or company. All logos and trademarks are the property of their respective owners.
Hear firsthand experiences shared by people living with HPP, from diagnosis through everyday life.
Join an event to learn about HPP and connect with the community.
Stay connected with updates and information about HPP, no matter where you or your loved one is on the journey.
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